Saturday, August 25, 2012

The Reveal!

Thursday was the day of the big reveal!!
Unfortunately Michael wasn't able to come to this appointment so I braved the task of taking both children on a road trip.
 
It might have gone a bit smoother had I remembered the receptionist telling me (6 months ago) that the Dr at times is long in a surgery during the day, making him late to the clinic.  Yea, we waited nearly 2 hours. . . . .  All things considered the girls did very well during the wait and made 'friends' with the other patients quickly.
 
Once we got into a room, he got straight to work cutting off the cast.  He saved my "drawing" on the bandage for me.  He had an employee (or understudy, or random stranger I don't really know who he was) throw the cast away and he commented "wow, that's heavy!"  I know, right?
 
A few people tried inform me on what to expect when a cast comes off. It still not sure it helped, or that I listened.  Seeing her long middle finger made my eyes swell with tears. It seems so silly at times yet I'm so grateful this will be but our memory (not so much hers).  He said, it looks just like it was supposed to (it wasn't exactly pretty). The fingers were pretty swollen, and due to the amount of gauze between them, very much separated.  When I mentioned it wasn't quite what I expected he asked me what I did expect?. . . . I said "not so purple" (which was the markings where he was to make the cuts) or I guess more healed than it was, like her hip where they took the grafts.  She kept rotating her wrist and the Dr said "I bet that feels really good".  He quickly pointed out which parts were grafted, but I didn't really inspect too closely (and failed to get a picture). 
 
Then it was time to bandage her back up. 
 
 
He put a piece of what looked like wet netting against the stitches then a small roll of gauze wrapped in between her fingers and around her hand with extra batting on the tip of her fingers and secured with tape.  Her little thumb sticks out a bit. Very manageable, not as stinky and soft. Since the Dr will be on vacation he said we could have her regular pediatrician take this one off - YAY! Then no more restrictions and we be allowed back in the pool/water just as they close for the season :(
 
He wants to see her in about 6 weeks just to keep a loose eye on things then we'll just watch the growth of her fingers over the next year or two to see if they straighten out by being separated, and where the growth centers truly are positioned before we really talk about a future surgery, as there may not be a need.
 


Thank you again for all your thoughts, prayers, concern, and well wishes - not to mention the phone calls/text messages to help keep me awake on the drive :) We truly appreciate it, and hope you feel of our love as well.

Wednesday, August 22, 2012

Clubby

Kelsey has acclimated quite well to the giant club she's been forced to lug around. In fact I think she's complained the least of all of us. I've gotten my toes caught between it and the ground too many times to count (and it doesn't feel good). Rylee and I both have taken a few good punches as she tries to join us for stories or just for fun or because we happen to be where she would like to go.  My chin gets in the way as she tries to touch my cheek/jaw and a 'hard' cast against a shin is louder than you'd think. She smacks it really hard against the highchair tray or table as well. It started out too heavy for her (and end up hitting herself in the face) I keep thinking once its gone (tomorrow!) she'll be used to the weight and start hitting herself again. I had to record her crawling with it. She often will put her weight on the cast and move her other had and feet and just slide across the floor on the cast. Its pretty funny. She can get some serious speed :)

 {Thanks Auntie for the Doggie - it plays music and its ears flap.  Sometimes she loves, and sometimes it terrifies her :) }
 
Who needs an actual dog when you have a crawler? Her favorite spot is under the table. . . . . usually after the snacks she threw on the floor only seconds prior.

She refused to let the club slow her down.
 We've been very limited in the wardrobe department.  Though we have more items that fit around the cast than I originally thought, she definitely has been wearing the same few outfits, and I've loosened up on my "always in sleeves" rule as onsie sleeve hems have zero stretch and its been kinda weird to see that much of her shoulders, but those few sleeveless or cap-sleeved shirts/dresses we have are the only items with a big enough arm hole.  We've had a particular difficult time with pajamas (we have one short-sleeved pair that fits if I *really* pull) so most of the time she sleeps in what she's wearing.  Its funny because when its time to get the girls ready for bed Rylee gets excited and says "jammies on! And socks too!! Kessy wear jammies? no, fit on her cass." I love her little raspy voice.
 
I couldn't let the opportunity go by without signing her cast.  I went for a slightly less traditional signage. :) I'm sure it would be covered in stickers if I let Rylee know it was acceptable behavior.
 
 We had a picnic dinner and watched a movie last Friday night while Michael was out of town. While I was getting dinner and popcorn ready I couldn't help but laugh at what was going on in the living room and pulled out the video camera. All that Olympic watching must have made an impact on her. Stick that landing!
The "ta-da" is my favorite.

Saturday, August 18, 2012

O-Wympics

We thoroughly enjoyed watching the Olympics this year.  It was both the girls first {Rylee was born the day after the closing ceremonies in Vancouver}.  I don't really remember watching much besides a few gymnastic routines as a kid, but I've watched a lot more since we've lived here. Rylee was really cute about them:

When she saw the first divers she said "Whoa, pretty swimming!"
She then became obsessed with them going "under water" or "dancing under water!" for the synchronized swimmers
She practiced her stokes a lot during the day. (for some reason more so while in a shopping cart)
One afternoon after waking up from a nap we had the following conversation:
"Momma, watch Dora?" "no, hunny"  "wympics?!" "yes, we can watch the Olympics"
Having the Olympics to watch was good neutral ground for her and my Mom while we were gone.
by the second week she was clapping along with the crowd, insisting we all clapped as well "Momma, clap! Daddy, Clap! Grandma, CLAP!"

We celebrated the games {as many I'm sure did} with an epic dance party during the closing ceremonies.  Rylee had been enjoying it all so much we let her stay up late, at least for the Spice Girls reunion. (The Spice Girls was the very 1st CD I ever purchased .  . . . . funny the things you remember)

Wednesday, August 15, 2012

Grandma

We're so grateful Grandma was able to come help out last week.  She stayed with Rylee while we went to Houston and watched both girls several other occations so we could do a few things including a date!  My Mom even taught me how to crochet a bit {if only I can remember. . . .  . . }

Nothing like getting all the milk you can drink, all books you can read, and all the Dora you can watch, all while staying up past bedtime -  Grandma's aren't supposed to say "no".  Did I mention she let this Momma sleep in and served as my personal shrink? Thank you!! We love and miss you!

Tuesday, August 14, 2012

Blue Bell

If you haven't tasted Blue Bell ice cream, you are missing out! Ok, so maybe its more of an iconic thing to me than anything but on our way home from Houston last week we decided to take a detour and visit the factory in Brehnam Texas.

We learned all sorts of interesting things like they are the 3rd most popular brand of ice cream sold in the US (pretty amazing as its only available in parts of 20 states), they have their own in-house bakery (for cookies in their cookies and cream etc), they only know what flavors they will be making about a week in advance as the flavors available are entirely based off of purchases (aside from seasonal products).  They have several nozzles feed into one carton and that is how they get even portions of different flavors (such as the great divide and Neapolitan) and we also learned the reason the ice cream is packaged then conveyored upside down is to create a seal with the lid to preserve freshness as well as reduce product cost (no plastic wrap needed).  Employees really can eat all the free ice cream they want.  Hence one of their many slogans "we eat all we can, and sell the rest".  We were surprised the tour took us by offices, locker rooms and the employee lunch room.


 Too bad Rylee missed out. We brought her back a souvenir anyway.

We had our included 'scoop' of ice cream and were back on the road.  It was fun and we're glad we stopped, but its not really worth the trip just for that.

And just for fun, my top 5 flavors are: Pistachio Almond, Summer Strawberry Pie, Snickerdoodle, Cookie Dough and Butter Crunch

Come visit, I'll stock the freezer.

Saturday, August 11, 2012

Kelsey's Surgery

Kelsey's surgery to separate her webbed fingers was Wednesday.  The week before I was really starting to stress.  I mentioned to Michael, I don't know why I felt like I had to wait until the night we left to get a blessing. . . . . . because after he gave me a blessing I felt so much better.

The circumstances leading us to her Dr was stressful at the time, but turned out to be so great.  He is in Houston so its a bit of a drive (about 3 1/2-4hrs) but worth it for the best.  I often compare it to someone traveling from St George to Primary Children's in SL - which isn't terribly unrealistic.

Here's a more recent picture showing how her fingers were connected.

She often would stick her thumb in between them.

The underside
She could have breast milk 4 hours before, So we woke up to eat so she would be happy while we waited.  The nurses commented about how great she was.
Here she is in her GIANT hospital pj's.  (I was bummed I found a free pattern for a hospital gown just two days before. . . .  maybe next time {although there is a possibility she may not need another surgery to correct the bones - the current plan is to watch if/how the separation affects her fingers straightening out as the growth centers on her bones won't show up on an x-ray until she's at least 18 month or so).  I did think it was really cute they had a huge area full of wagons, and every trike or car you could imagine for kids to ride to the operating room.


The Dr came in, "claimed" (by marker tattoo) her right arm with his initials went over the process again making sure we didn't have any questions:
He made zig-zag cuts in between her fingers (careful to avoid nerve endings that affect feeling in her fingertips) and reconstructed the slant from her hand between the fingers.  Because there isn't enough skin to cover two separate fingers (simple surface area equation here) he took skin grafts from her hip. 

The Dr. explained that because it is a lot of "Kindergarten cut and paste"  it would take some time.   There were a lot of tiny pieces of skin grafts (taken from her hip) he stitched together on the little fingers he said it would take him about 2 hours. 

Then the anesthesiologist came to talk to us.  Her duty was to keep Kelsey comfortable :) She'd put her to sleep first and then put in the IV.  She commented she'd try to find the best vein, not sure if it would be her hand or foot.  There is added difficulty since she's "kind of fluffy" and not recently hydrated. She assured us she wouldn't leave her side, and would keep watch on her stats keeping her comfortable.

Then came the nurses.  They introduced themselves and told Kelsey to give Mom and Dad big kisses.  We obliged.  And Michael passed her off and they literally ran out the door cooing at her all the way.  There wasn't time for tears.  One nurse practically yelled from down the hall "we both have all boys, we're thrilled to have a girl today" I said, well, if I'd have known that I'd have sent her with a bow ;)

We made our way back to the waiting room.  They had a big TV where each patient was listed (by a previously given #) with their Dr. so we could know where she was.  The color changed when she started in the OR and then again when she was moved to recovery.  We passed the time by trying to take a nap, surfing the web and I listened to a book.  It was good to have something else to "sort of" focus on.

It took about 2 1/2 hrs.  The last 20-30 minutes I was getting especially anxious.  I just happened to walk over the monitor to get a closer look and watched her number change to in recovery - ran to Michael to get our things gathered and the Dr showed up.  He told us everything went well and she was being moved to recovery.  They called our name as he was talking so we cut him off to go see her. (he understood :) )

The nurses said she woke up from anesthesia really quickly which is good, but as to be expected she was really disoriented, and HUNGRY!!  Not in too much pain, as they'd just given her morphine.  The nurses were trying to give her a bottle  as we came to her little bed.  She had the saddest cry- it was really horse (from the breathing tube). I swooped her up as they made a chair ready. 

You know how people comment how scared they are to hold a newborn because they are afraid they will break the baby?  That's nothing compared to your baby with billions of cords, an IV, cast, and graft dressing.  I was so afraid that if I moved her I'd hurt her.  I nursed her and finally let a few tears fall. I was so happy to have my baby in my arms again.  The Dr found us again to finish giving his instructions :)


She'd whine and then fall asleep, wake up every 45 minutes and whine a little and fall back asleep.  I'll admit, I was being quite the baby hog.

The nice thing about being back at the hospital this time is they not only let me, but encourage I carry her when we moved areas. (when she was born she had to be in her bassinet when not in my room)

The anesthesia made it look like a rash across her head, and a little swollen. Poor baby.


Like I said, whine and fall asleep.
I kind of liked just being able to hold and snuggle for another 2 hours.  She doesn't normally like to be held for naps.  I was being sort of a baby hog and eventually rescinded and gave Michael a turn.

Since her time in the recovery room was uneventful we were able to go home on schedule.

Finally aware and uncovered enough to realize her hand has been replaced with a huge, rather heavy something we keep referring to as a "cast" (which apparently above the elbow cast is standard if you're under 4).  As such she's dubbed the nickname "cluby"
The Dr advised us to stay the night in town - as to not make her travel the day she'd been under anesthesia, and in case something happens or she has a crazy reaction to something we'd be close. 

Our friends the Harris's were gracious enough to let us crash with them the second night.  I figured Kelsey girl was starting to feel more herself as as soon as we pulled her out of the car seat she graced us with a smile.

It seems every day she's gotten more and more comfortable with the 'club'. 
Day 1 of surgery: it would just be caught behind her and if she tried to crawl, she basically just went in circles.
Day 2 lift hand to inspect and get whacked in the face from the weight, able to pull in front of her.
Day 3 Use to army crawl, and put some pressure on tip of cast
Day 4 able to roll over cast and set up propelling it forward to crawl.

I really only gave her pain medication the day of and the next night.  I figured I'd see how she acts and sleeps without it completely and she's acting completely normal.

Thankfully my Mom came to stay with Rylee while we were in Houston.  (It would have been really hard to try to juggle her in the hospital for that long and they didn't allow siblings in the recovery room).  When we came home Michael went to find Rylee and she came running to the door to give me a hug, she rounded the corner to see me holding Kelsey and spotted the giant bright yellow "thing" where Kelsey's hand used to be.  She stopped dead in her tracks and her eyes got HUGE.  The sweet smile on her face immediately turned to fear.  It took her a minute to get close (even to me) but she mustered up the courage.  She now calls it a band aide - interesting as she calls actual band aids "stickers"

The suspense is killing me.  I think I'm having a harder time not unwrapping her cast to see her "new hand" than I was not knowing her gender for 9 months when I was pregnant. She'll have the cast for two weeks, then we change the dressing for a boxing glove.

In some ways I think this whole experience has been harder for me than it has been for her.  She won't know anything different - soon enough it will be but a memory.  We're so grateful all went well (thank you for your thoughts and prayers), and that we were lead to this surgeon. We truly are blessed. 

Thursday, August 2, 2012

Deja Vu

legs on a couch + backwards movin babies + slippery floors = STUCK!
{Kelsey 6 months}
 {Rylee 5 months}
 Hmmm, maybe we should buy furniture without legs. . . . .(something only a parent would know to look for) though I hope by that time I will no longer be fishing little movers and baby toys out from underneath.
 Kelsey location rolls much much more than Rylee did. Its funny to watch her wiggle her body around to position herself in the right direction to get to what she wants.  Rolling under the crib has also become a new part of the bedtime routine.

Just imagine all the trouble these two will get into together :) 


They are lucky to have each other.

Wednesday, August 1, 2012

Guadalupe River State Park

My friend took some pictures while we were at the state park last weekend so I thought I'd share more of our rock throwing, splashing, lip pinching sunny adventure.